當心血管疾病（心臟病或中風）確診后，醫(yī)生會提供治療建議，但病人的決定是至關重要的。美國心臟協(xié)會（AHA）與 以病人為中心的成果研究所（PCORI）合作，網(wǎng)絡征集文章。你可以是患者，社區(qū)志愿者，家庭成員或任何人，只要你有這方面的親身經(jīng)驗。根據(jù)你的情況來闡述患者的治療決策是怎樣做出的，例如：對壽命的影響，對生活質量的影響，費用，或其他？同時關心過程的完整性，時間，等等。。。
“請于2016年6月9日之前將稿件上傳到：https://www.innocentive.com/ar/workspace/challengeDetail?challenge=9933835“
THE CHALLENGE
Treatment of heart disease and stroke often requires patients and their families to make many decisions on how to move forward after a cardiac event. Specifically, AHA and PCORI are interested in learning about the “decisional dilemmas” you face – your insights will help guide future research to improve heart health. Based on the input from you and others in the patient and caregiver community, we will identify important concerns and use the perspectives to target research towards what matters most.
Despite multiple available treatment options that your physician may describe, you may not always know which option is right/best for you. Tell us about the most difficult decision that you or your family faced when evaluating treatment options for heart disease or stroke.
In addition, we would like to understand more about what you considered most important when making this choice or decision. Please pick your top three choices and tell us why they are important to you and your family:
Side effects of the treatment
Complexity of treatment plan
Difficulty in adhering to a treatment
Impact on my quality of life
Potential to prolong my life
Whether the best option for me is selected based on research of people similar to me (personal characteristics such as my age, race and gender)
Whether my family history and genetic makeup would influence the effectiveness of a given option
Whether a trusted source recommended a specific option
The financial impact of the options for me and my family
Other:________
Any submission should address the following Submission Requirements:
The submission can be from anyone (patient, caregiver, family member, or other)
[更多]
渝公網(wǎng)安備 50010802001068號
